Category Archives: Family

Invasion of The Doctor Snatchers

I had the most interesting doctor’s appointment today. My sister came with me as back up because I have trouble remembering things. My appointment was with the Urologist that can be a little overbearing and I always take what he says the wrong way. Even my sister has heard him through the wall being an ass to an elderly man with prostrate cancer.

When he entered the room he apologized profusely for being late and gave me a hug. He said he loved what I had on. He then said hello to my sister and said how great it was to see her again. We went over what the plan was going to be for my kidney problem. He wanted to take out one of my stents in their office surgical suite but wasn’t sure.

I was trying to explain to him my problem with waking up from anesthesia because of the Conversion Disorder. I was stuttering and getting emotional. It’s embarrassing when this happens. I needed him to be aware so his staff would know. At the hospital they are a little more equipped with dealing with these problems.

My sister was getting annoyed and said “He doesn’t need to know all this.” He actually hugged me again and said ” Look I love you and care about your well being so I do need to know. If you think the hospital is better than we will do that.” I thought I would fall off the chair. My sister looked even more annoyed.

I think she looked annoyed because she was diagnosed with a version of Conversion Disorder that was easily taken care of. Mine may never go away. Her’s was due to being fired from her job, having 2 small children, and her husband’s addiction issues. Mine is caused by multiple traumas. I also have a coexisting condition that makes it harder to treat. She will never understand this.

When at one point she tried to “shush” me, I said “Don’t you dare do that to me”. It didn’t come out clearly like that because of my stutter but she got it. So did the doctor. On the way out I got more hugs from him. When my sister and I got outside we both started laughing. We couldn’t believe the “hugging” and the “I love you’s” during my visit. I told her there was something not quite right with the guy. You never know what you’re going to get. But I’ll take today’s visit over the other ones anytime.

I’m Crazy?!?

I was getting some negative feedback from you know who about getting another dog. Even my dad was against it. Now my dad has done a 180 and is obsessed with finding another dog. He actually was mad at me for not connecting with one we looked at today! He was mad the entire ride home. He isn’t even putting up any money for fees or anything. He’s beginning to annoy me. I’m still holding a grudge for the “perfect” ones he let get away. If he had went with me to fill out the paperwork it would have looked better. He kept saying no and waited until the last minute to say yes. I love him but he’s stressing me out. And my sister isn’t talking to me at all. I guess that isn’t such a big loss. I feel like I’m in the Twilight Zone.

Is It Worse To Be Too Fat or Too Thin?

I was born a twin. We were born five minutes apart from each other and are fraternal. When we were little we were the same size which was average. Somewhere around the age of 10 that started to change. I was starting to go through puberty earlier than my sister and gaining weight. As the years went by my weight continued to increase while she stayed not exactly thin but maybe 10 pounds over the average weight of other girls around us.

In high school I was a size 16 and she was a size 10/12. From the age of 10 I was picked on because of my weight. I was called names and gym class was always a nightmare. My sister had more friends than I did but still thought of herself as fat when she looked in the mirror. She wasn’t picked on. She would eat only white rice with vinegar on it for months because she believed she was too fat. While I was getting mooed at and called names she was imagining herself as my size. That was not acceptable to her. By the time we graduated high school I was a size 18/20 and she was smaller than a 10.

My sister went to college where the pressure of thin roommates drove her to eat even less. She had fainted twice in class. No one seemed to have a problem with her hip bones sticking out and the paleness of her skin.

When we would get together she would complain about her weight. I would get so upset at times but kept my mouth shut. My sister can hold a grudge better than anyone. One day I had had enough. The night before I had actually been spit on at a party while a guy did his impression of an elephant. I was drinking heavily then but didn’t stick up for myself. When my sister started with how “fat” she was I lifted my shirt and said ” You wanna see fat? Look at this!” and jiggled all my rolls in front of her face. She said I didn’t get it. She was right.

I finally tipped the scales at 268 before being diagnosed with Celiac and Bipolar Disorder. I also stopped drinking. The combo of meds and the gluten free diet caused me to drop weight too fast. In a year and a half I went from 268 to 130. It wasn’t through a healthy diet and exercise, it was because I was sick.

Throughout that time my sister got married, had 2 children, and her body changed also. She is now 170 pounds and very unhappy. Her husband actually likes her at this weight but that doesn’t matter to her. When she looks in the mirror she sees shame and disgust. I wonder what she thought when she looked at me all those years.

I now get comments about looking like “Skeletor” or the “Grim Reaper”. When my sister and I were talking today she was crying and upset. She said she was ashamed to see anyone she used to know. I said I wanted to see people I used know that used to make fun of me. Her response was “Why? Now you just look sick! You don’t look good!”. I can’t win. But I have to remember where this is coming from. Suddenly I’m not the “fat” twin anymore. She’s having problems dealing with that. She acts like I have no idea how it feels. I spent most of my life being tortured about my weight in the most humiliating ways. I allowed it to happen because I thought I deserved it. I let men use me because I thought I couldn’t do any better and that’s what I deserved. I don’t deserve it no one does.

I have to remember she’s sick so I don’t punch her. She never went through what I went through. I had one guy tell me “I would date you if you weren’t so fat”. Another mentioned I shouldn’t get pregnant because no one would be able to tell. Another said I was great and would be “marriage material” if it wasn’t for my weight. Things said directly to my face.

I’ll never forget being so excited to go to this one party with my best friend and the guy she was seeing. I was to meet them at his mother’s house. When I got there his mom answered the door. I didn’t understand what was going on. I was dressed up and tried hard to look nice. His mom told me they had left already. His sister who was giving the party only wanted a certain type of people there. She asked if I understood. I did. Unfortunately. His mother was bigger than me and looked at me with pity. Me? Well I did what I always did when I felt hurt. I drank it away.

My sister has never experienced such things. She married someone connected to the music world. She lived in California for awhile where she was backstage at concerts meeting celebrities and going to music awards in limos. Even when she moved back she still got to vacation with them. Her complaints boggle my mind. I’m sure my problems are just as confusing.

You would think we could help each other. I’ve been on both sides. She isn’t ready to listen or accept my help. Again I’m back to keeping my mouth shut. The problem is she is always ready with a solution for my “many problems”. I have to let it go or it will destroy our relationship. I don’t want that. She is my twin, my sister, and I love her no matter what.

How To Tell If Someone Really Cares

I left the house today. It had been awhile and my sister invited me over. She really invited me so I could color her hair and she said she would help me with mine. None of that happened. Her husband was home and sleeping in his man cave in the finished basement. I was there for about 5 minutes when he yelled something up the stairs. It startled me. I thought he was mad. I had boots on and they have hardwood floors, I thought I was being too loud. I got a little teary eyed. My sister got annoyed and said she knew I was “off” the minute I got there. I tried to explain but she went into a tirade about my needing to see a therapist and needing to try harder to control myself. She used herself as an example.

When she was done I didn’t feel like doing her hair or anything else. I was tired of trying to explain myself over and over. Trying to explain how my brain works, how it’s different than her’s.

Last year she was having these seizures where she would just get a blank stare. She went to several doctors who all diagnosed her with a form of Conversion Disorder that was due to stress. Once she started therapy and found out that there was nothing wrong with her the seizures stopped.

My type of Conversion Disorder is different and continues. I also have some problems with my brain. There is swelling on one side and what they call a T2 Hyperintensity. I also have a loss of white matter unusual for someone my age. The swelling was supposed to be monitored. It never was. This was in 2008. Also a diagnosis of Bipolar with Conversion Disorder makes it harder to treat. My sister doesn’t listen to this.

While I was there my friend texted me and wanted me to call my kidney doctor and tell him I’m in pain to get pain pills so she could buy them off of me. She said her knee hurt. She does have problems with her knee but she’s asked me for Adderall and other meds before. First she will ask how I am and act concerned. An hour later she’ll ask for money or meds. She is the only one who ever returns my phone calls or checks to see how I’m doing. I just don’t like this other stuff and I don’t do it. At first I gave her a few Adderrall or whatever but when it became a habit I stopped. She’s always paid me back any money she’s borrowed. Still I don’t like it.

I made an appointment with my hair dresser. I’m not depending on anyone and I can’t do it myself anymore. My arms burn when I hold them up for any length of time. Plus I get to be around people and just listen and watch.

I’m going to get used to being by myself and doing things alone. I’m tired of saying sorry all the time or explaining myself when I shouldn’t have to. I don’t need to be judged or reprimanded. I do these things to myself everyday.

Am I Toxic

Today was a more than usual bad day. I had an argument with my father which led to him raising his fist to me. I understand living with someone who has a Mental Illness or Psychological issues is difficult. I also understand living with End Stage Renal Disease and going to dialysis 3 times a week can change a person’s personality and lead to depression.

In my 20 years of drinking my father knows of one incident where I was assaulted by a man. There were other times by other men, I just didn’t talk about them. When I started to really take sobriety seriously I decided it would never happen again. Not verbally or physically. Yet I find myself in the same situation the only difference is neither one of us is drinking.

My father is depressed, he had just come back from visiting my mother’s grave. I know he has things on his mind like, paying for dialysis, how to fix up the house before he passes, how to cut back on the amount of birds he has, making a fair will, what will happen to me, this list is constantly going through his head. I’ve tried to help but he won’t listen to me.

I have plenty of my own issues. Paying for my hospital bills, handling my Psychiatric Disorders when they seem to be resistant to everything the doctors try. My own physical health. My family doesn’t want to acknowledge just how bad it is. All of it. They do not want to try to understand any of it. The lists of what not to say to a loved one with Bipolar Disorder is useless. They have said it all. This is the most frustrating thing of all. I feel that they think I’m making it up.

I tried to talk to my sister today and she said “You are very difficult to live with.” What do I do with that? I could apply for housing, but the wait list for the wait list is almost 5 years. I could try to do it on my own but when I look there isn’t much in my price range. I love my dad very much. If I were to move out his health and well being would decline rapidly. I know this. But am I making things worse by staying?

When I found him sobbing on the couch I sat next to him. He said he didn’t know why he behaved that way. He never has before. He was ashamed. I’m the only one he talks to, shares the same interests with. He loves me. But we can’t go on this way.

I think it’s time for me to do something that I have been putting off for too long. Trying therapy again. Therapy has changed since I was 17 or 20. It will take work to find the right one and one who takes my insurance. I detest therapy. I’m hoping for a better way this time. Not one who gives me homework about where I see myself in 5 years. Or tells me to picture a stop sign when a certain behavior happens. That isn’t going to work for me. But something has to. I don’t want the people around me to be hurt by my illnesses. Not physically but their quality of life. Maybe mine too.

I Thought I Was An Adult

It’s extremely difficult to be 42 and living with your father. I have never lived on my own. Even when I was making $40,000/year and could move out, I didn’t. In the deepest darkest part of my mind I knew if I was on my own I would self-destruct. I’m annoyed that I have to ask permission about things because it isn’t my house. Technically it will be in the future but I don’t want to think about that. My dog that passed away was really more of a Therapy Dog for me. The other 2 dogs pay attention to my dad or sleep. Now that my dog is gone I’m devastated. I had seen 2 Chihuahua brothers up for adoption at a local rescue. One is long haired the other is short. Their names are Ham and Eggs. They can’t be separated. I went to check them out. The posting said that they take some time getting used to people but once they know you they are great. I sat in a little room in a submissive position with my head down. The woman opened the door and those 2 dogs ran to me and jumped in my lap like they had known me forever. I was petting them and giving them love when the woman asked said she would be back in a few minutes. They are both all black with one pat

ch of white on their chest. I normally don’t like short haired Chihuahuas but this one was incredible. If you looked at him in the right light he was actually brindle. Next thing I knew the entire staff was watching me through the window. I though I did something wrong. It was the exact opposite. I was the only person these dogs had interacted with this way and they were surprised.

My dad said no. I have done nothing but think about them since that day. I’m angry that he keeps letting his pigeons grow in numbers. He’s up to almost 300. They’re bad for his health and mine. I’ve never said a word about them not even when I had to help vaccinate all of them. This involves sticking a needle in their necks. I stuck myself a few times. I have several autoimmune diseases. But he needed me so I did it.

When it comes to allowing me this, something that would be considered therapy for me, and would help the other dogs because they have been down since Pookie’s passing, he says no. I feel like a child who had their lollipop stolen.

When I grieve it’s for a long hard time. Things are so rough right now, I just wanted something good. People tell me to just move out. It isn’t that easy for me. There’s money and I don’t want to live in housing afforded by the state. I’ve seen where my Aunt who is mentally ill has lived and it’s awful. Plus I’m scared and I love my dad. I’ll just have to suck it up.

Where Do I Put My Anger?

I find myself in a place that I try not to be in often. A state of anger, rage, and the past. I fought with my father today about today about the past. He screamed at me “How could we believe you when you were drunk out of your mind?”. I asked him if he really thought all that blood was from a simple fall? He asked me if I wanted him to kill the person because he’s dying anyway. I told him it didn’t matter now.

He thought I was over it. I asked him if he ever thought of why I startle so easily, why I don’t like loud men’s voices, why I cringe into myself when he starts slamming things around. He got up and went outside.

I wanted to dress up and drive by my friend’s house just to see who was there. I was frightened of what I might do if I saw she had company and again I wasn’t invited. I was afraid he would be there and I wouldn’t be able to stop myself from screaming or throwing something at him. I can’t get these demons out of my head.

It isn’t just that one person. There are a few that treated me like I was nothing, useless, garbage. The things humans do and say to one another are what hurt the most. What I can’t forgive are the ones that pretend to understand and act nice but secretly have ulterior motives. I am a human being. I am not a marketing tool, punching bag, ego booster, or doormat. I feel things deeper and for a longer period of time than other people.

Getting Back To Me

Today wasn’t so bad. I only cried a little and that was because I was stuck on the bathroom floor. I ate too much and one of the things I ate was Alfredo sauce. Dairy is no longer my friend. My stomach isn’t used to large quantities of food so I was very nauseous. After being sick all my energy was spent. So that’s how I wound up on the floor.

The doctor’s appointment yesterday was a waste of time. There are still no answers as to why my kidneys failed but one good thing is that it isn’t cancer of my kidneys, bladder or ureters. I have to see another doctor though. I expected as much. My dad went with me even though he couldn’t hear half of what was being said. It was still good to have him there.

I have decided to cut my sister some slack. This is the only way we can have a relationship. I have come to realize that she has a lot to deal with herself and I certainly don’t make things easier. This doesn’t excuse some of the things she says but I know she loves me. She called last night to apologize for some of what she has said and told me what she has been dealing with. Finally a two sided conversation. Baby steps.

I’m still sad, worried and anxious. Those feelings will always be there. I’m trying to tame them down as best as I can. Some days I won’t be able to and I need to accept that. I also need to stop and think that it’s just one day and hopefully tomorrow will be better.

Another Rewarding Conversation With My Sister

My twin sister returned Sunday from a short vacation to a place I had begged her to go with me. As usual I would’ve paid but she still said no. She had not contacted me or my father since we had to put our dog down. Today was a bad day for me. I was home alone with nothing to distract me from my thoughts. I had been crying when my sister decided to call.

Right from the start she was annoyed. She said “For once can I call and talk to you without all the drama?”. I tried to calm myself down so I could talk. My stutter was acting up so it was hard. She asked how our dad was doing and I told her that he’s really depressed. She said I was making him depressed. She said my constant negativity, crying, and drama was too much for him and I needed to get my “shit” together. She said I need therapy or to go into the hospital and that she wasn’t going to participate in my “emotional cutting” anymore.

For someone who never returns phone calls I don’t see how she participates that much. She says we talk more than normal sisters do. I must be imagining things because I know sisters that talk everyday. We talk once or twice a week and it always ends with her telling me all my faults and me upset.

For the first time ever my dad said “Let her spend a day in your shoes then see what she has to say”. I was surprised because he usually stays out of it but he had had enough. When I mentioned signing up for housing he wanted to know who was putting that idea into my head. I didn’t say anything. He said “Let me guess, your sister?” Then he told me he needed me and loved me. He said he would be lonely and have nothing to look forward to if I wasn’t there. I know him better than anyone. He means it. It’s one of the many reasons why I love him.

Let Down

I must have been living in another dimension all these years. A dimension where my dad was the hero, where he saved me from the monsters under my bed. He did for awhile. I guess my dragons became too big to slay. After a time he stopped trying. I didn’t want to admit it. But he didn’t slay the dragon that beat me, he didn’t stand up to the hospital for my mom and he still doesn’t for me. He’s become someone that doesn’t want to rock the boat. I NEED an advocate for the times I literally can’t speak. For when my heart is breaking and my┬ámind shuts down. I need a Colin Farrell in a Winter’s Tale. But it’s real life and none of that will happen.

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